Tuesday, February 11, 2014

Why We Need You To Participate In Your Cure

Here are some of the top "Dialysis Patient Advocacy Groups" in America.

If you want to put an end to your pain and suffering caused by your kidney failure, then tell me what word is missing from these mission statements.

National Kidney Foundation

The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.

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American Kidney Fund

Mission Statement

The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts.

Our Vision

The American Kidney Fund envisions a world without kidney disease. As we move toward that goal, we work to achieve a nation in which kidney patients have access to the health care they need, and one in which there are far fewer people with kidney disease.

Our Values

Putting Patients First: We are the charity of choice working to ensure that kidney patients have access to quality health care that they need.

Leading with Integrity: The American Kidney Fund is recognized as a leading national health charity, known for its exemplary stewardship of the donated dollar.

Being a Valued Partner: The American Kidney Fund establishes strong relationships and strategic partnerships to meet the needs of kidney patients and to carry out programs to prevent the disease.

Promoting Team Excellence: The American Kidney Fund’s volunteer leadership and employees achieve a culture of excellence through individual initiative, creativity, teamwork, mutual respect, diversity and accountability.

Increasing Public Awareness of Kidney Disease: The American Kidney Fund is recognized as a leader in providing health education and intervention to people who are at risk for kidney disease

Dialysis Patients Citizens

With more than 29,000 dialysis and pre-dialysis patients making up our membership, DPC is working to improve the quality of life for all dialysis patients through education and advocacy. We are a nationwide, non-profit, patient-led organization with membership open only to dialysis and pre-dialysis patients and their families. Our policies and our mission are guided solely by our membership.

Mission and Charter

DPC is a non-profit patient organization dedicated to improving dialysis patients’ quality of life by developing awareness of dialysis issues, advocating for dialysis patients, promoting favorable public policy and improving the partnership between patients and caregivers.

DPC wants to give a voice to dialysis patients. One of DPC’s goals is to provide dialysis patients with the education, access and confidence to be their own advocates. Through our grassroots advocacy campaigns, Patient Ambassador program, Washington, DC patient fly-ins, conference calls and briefings, DPC works to train effective advocates for dialysis related issues. DPC is here to rally patients to have their voices heard.

Patient Driven Organization

The intent of DPC is to reflect the voice of the patients. Our Board of Directors is composed of people with ESRD. We also rely on input from our membership to determine both our education and advocacy priorities. DPC members are invited to complete education and advocacy surveys to help shape DPC’s focus and determine the organization's priorities.

Kidney Care Partners

Kidney Care Partners

Mission Statement:

Members of the kidney care community have formed an alliance -- Kidney Care Partners. Our goal is to involve patient advocates, care professionals, providers and suppliers. Our mission, individually and collectively, is to ensure:

􀂾 Chronic kidney disease1 patients receive optimal care;

􀂾 Chronic kidney disease patients are able to live quality lives;

􀂾 Dialysis care is readily accessible to all those in need; and

􀂾 Research and development leads to enhanced therapies and innovative products.

The missing word is CURE

If this is what you want for yourself, your family and your life, then you are going to have to join with those of like minds who want the same thing-A CURE.

If your looking for a place to start-Start Here!

Just make a comment on one a post to follow this blog.

The Great American Dialysis Conspiracy

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